tag:blogger.com,1999:blog-6708807491363992142.post272638151943110209..comments2023-12-05T12:44:29.131+00:00Comments on Shoshiplatypus: M.E. International Awareness DayShoshihttp://www.blogger.com/profile/00028185699225457125noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-6708807491363992142.post-19196293923144482892013-11-13T00:54:44.210+00:002013-11-13T00:54:44.210+00:00Thank you for your comment, Debbie. I have tried t...Thank you for your comment, Debbie. I have tried to find a way to reply but you do not appear to have a blog and I couldn't comment on your Google+ page, so I hope you return here to see my reply!<br /><br />I am sorry you have had such a rough ride on the journey to diagnosis, and I agree with everything you say. M.E. can be every bit as disabling, and even more so, than M.S. and it presents in many similar ways. I was also tested for M.S. If one's GP is not familiar with the illness, or is ignorant or mis-informed, he or she may be quite unsympathetic to one's plight and can block all avenues of help - the GP is the gateway to all available services. I believe the education of professionals is one of the most important aspects which needs addressing if M.E. patients are going to get a better service. I agree that a bit of inside knowledge goes a long way to changing the attitudes of the professionals!<br /><br />Thank you also for your lovely comments about my blog and my art. Both have been somewhat in abeyance for several months because of our house move, but hopefully soon I shall be up and running again, in my beautiful new ARTHaven studio.<br /><br />Hope you are as well as can be expected.<br /><br />ShoshiShoshihttps://www.blogger.com/profile/00028185699225457125noreply@blogger.comtag:blogger.com,1999:blog-6708807491363992142.post-88912173616831083702013-11-12T20:48:40.441+00:002013-11-12T20:48:40.441+00:00I found your blog through looking at zentangle ima...I found your blog through looking at zentangle images on google and came across this section - BTW I love your hands tangle, it is just beautiful. I also have ME/CFS and although I have only been diagnosed for about 2 yrs, I have seen umpteen Neurologists for years whilst they were constantly looking for MS. They kept saying I had MS symptoms but not the disease - joy. Eventually I saw my Neuro who asked what my biggest issue was and I replied the tiredness, that I was tired of being tired and she sent me onto the dept who dealt with ME so after 10 years or more I eventually got my diagnosis. This condition is so under rated it is beyond not funny, doctors don't give it much credit and as a result neither do employers or job centres/ benefit agencies etc. I sometimes think if any of their family suffered with it then they might just have an inclination to change the way they think, but that is just me being bitter. Anyway I love your blog and your art. DebbieAnonymoushttps://www.blogger.com/profile/03388877467320245704noreply@blogger.comtag:blogger.com,1999:blog-6708807491363992142.post-66057574398360318642012-08-03T14:55:38.982+01:002012-08-03T14:55:38.982+01:00Great post! It's so hard to explain 'I don...Great post! It's so hard to explain 'I don't have a psychological disease' wihtouth sounding like you have a psychological disease! I also have M.E. - great to see you on here.Tanya Marlowhttp://tanyamarlow.comnoreply@blogger.comtag:blogger.com,1999:blog-6708807491363992142.post-81351819693444385702012-07-06T11:02:33.448+01:002012-07-06T11:02:33.448+01:00Thank you for this incredibly informative post. I ...Thank you for this incredibly informative post. I think you are a an amazing champion for M.E sufferers. Mo xTwinkleToes2dayhttps://www.blogger.com/profile/07848604298196551253noreply@blogger.comtag:blogger.com,1999:blog-6708807491363992142.post-3811204286748605532012-05-12T11:54:21.300+01:002012-05-12T11:54:21.300+01:00That was very enlightening-thank you!!That was very enlightening-thank you!!Anonymoushttps://www.blogger.com/profile/17225823025750743495noreply@blogger.comtag:blogger.com,1999:blog-6708807491363992142.post-67112636912094709772012-05-12T11:30:42.532+01:002012-05-12T11:30:42.532+01:00I found your blog through the Velvet Moth Studio a...I found your blog through the Velvet Moth Studio and I too think Diana is a very talented lady. I was interested to see your post as I am also a sufferer of M.E. My symptoms have greatly improved over the last six years although they still rear their ugly head now and again. On an artistic note your zentangle art is beautiful.Carol Rigbyhttps://www.blogger.com/profile/00345128330586224856noreply@blogger.comtag:blogger.com,1999:blog-6708807491363992142.post-1410777625357436702012-05-12T08:24:00.155+01:002012-05-12T08:24:00.155+01:00This is an interesting post Shoshi. I don't th...This is an interesting post Shoshi. I don't think I would have heard of this disease had I not had a good friend who suffered with it. Meg had a little girl, though she had to stay in bed for the whole of her pregnancy, who was the same age as one of my sons, so we met at a Mums and toddlers group and stayed in touch throughout their school days. At my boys birthday parties Meg would suddenly lose the thread of our conversation and Peter would immediately take her home, but later she had an elctric wheelchair which made her more mobile and independent. It is a very complex condition. I know she had no recognition from professionals for many years. I hope your post gives greater understanding to those who know little about M.E.<br />I hope you have a good day.<br />Kate xmamapez5https://www.blogger.com/profile/16882819450456050281noreply@blogger.comtag:blogger.com,1999:blog-6708807491363992142.post-41967195863560408702012-05-12T08:09:14.546+01:002012-05-12T08:09:14.546+01:00Thanks for this - I learnt a lot. xThanks for this - I learnt a lot. xju-northhttps://www.blogger.com/profile/14133246789821330730noreply@blogger.com