WOYWW 482

Better late than never… It’s been rather a busy day and I’ve only just had the chance to get this post sorted.

Here’s my studio today.

Chaos reigns eternal. No change, except a bit more mess. I did manage to tidy up my wools a bit, though, over on the other side.

I’ve been busy again with the embellishments for my scarf. I finished the butterflies and have started making some crochet flowers. I shall just keep going until I think I’ve got enough! They are fairly quick to do, and relaxing while watching TV.

I’m glad I made a mistake with one of the butterflies and only did 6 “petals” instead of 8 – when folded over to create the butterfly, it makes a slightly smaller one, of a different shape. Serendipity, and nothing like a bit of variety! The larger flowers are done in several layers, and are quite 3-d.

Kitties

The kitties had their annual kitty MOT this week, and the first of the annual boosters of their inoculations. They were so good! They didn’t make a sound, either when the needle went in, or when they suffered the indignity of having a thermometer shoved up their bums. They looked slightly anxious but the lovely young Polish vet was so gentle with them, and she spoke to them softly, and gave each one a stroke after it was all done. They have gained so much weight since last year – last August, Lily weighed 1.33 kilos and she now weighs 3.3 kilos so that’s a gain of a whole kilo! Ruby was 1.23 kilos last year, and is now 3.6 kilos so she’s gained even more. She remains the heavier of the two, and is pretty solid! The vet said their weights were healthy and they shouldn’t gain any more without being overweight. They are eating well, and getting plenty of exercise running around the garden.

Here’s lookin’ at you, kid!

Kitty chorus – feeding time at the zoo!

Health Update

I still haven’t got an appointment for my CT scan to see if I really have developed another hernia (I’m pretty sure I have), but the support garments lady is coming to see me on 11th September for a fitting, which is progress.

The man from the company that supplied the power assist system for my wheelchair was down in our area yesterday and serviced my wheelchair for me. Good to go for another year.

Sourdough

Last weekend I made my best sourdough bread ever! I am following a particular Youtube video and this really seems to work.

Fantastic crumb this time – look at all those lovely traditional sourdough holes!

I made this loaf with half-and-half white and whole wheat flour instead of using wholemeal rye. I’m not sure if the improvement was due to this, or my improving dough-handling skills.

I have just started another batch, and this time I’ve divided the wholemeal half into half-and-half wheat and rye, to see how that goes. I do like the flavour of the rye.

Busy weekend ahead

This week, from Friday evening to Sunday afternoon, I am attending a Christian conference, non-resident, as the place is just up the road from us. I have been asked to sing and I received the list today – they want a lovely lot of songs, including a few from my repertoire which I haven’t sung for ages. I had a long practice session this afternoon and they are still a bit rough round the edges, but I may have another go this evening, and will certainly set aside some time tomorrow for further practice, and I think they will be OK. My friend is also singing, which is great. I’ve booked in for all the meals except breakfast, and my hubby is joining me for the first and last meals. It will also be a lovely opportunity to meet up with several old friends.

I have also been asked to bake the challah bread for the Friday evening meal, so I’m going to do that tomorrow as well, and work on my sourdough throughout the day. The sourdough doesn’t need a lot of work, but it needs quite a bit of attention – several folding sessions at two-hourly intervals etc. so it’s fairly time-consuming in that I have to be here, tied to the kitchen timer! There should be a nice baking smell in the house tomorrow.

Fermentation

My kombucha is going very well indeed. This time I set aside 6 bottles for second fermentation, with raspberry puree, which is delicious. The Scoby (Symbiotic Colony Of Bacteria and Yeasts) – the “dead jellyfish” that you use as a starter, has grown a lot and it’s doing a fantastic job. This fermented tea is so delicious, and has so many health benefits. I start a new batch on Fridays, and start the second fermentation of the previous batch at the same time – this is ready in three days.

I have also made a small jar of fermented dill cucumbers just to see how they worked. After three or four days on the kitchen counter, they are sensational. Definitely something to do again. Absolutely no effort required – I just cut up the cucumbers into strips, stuck them in a jar with some dill and chopped garlic, and topped the whole thing up with brine, covered it and left it to its own devices. I just had to “burp” the jar morning and evening to let the CO2 escape. It’s now in the fridge, but I don’t think it will be there for long!

The other day my hubby saw me at work in the kitchen and asked, “Are you working on your liquids?” – not drinks, haha! He said this in a rather dark tone of voice as if he was suggesting that they were the product of Dr. Frankenstein’s laboratory.

Other food

My hubby has started bringing in fast quantities of apples from our tree. His brother was over today and he confirmed that they are Bramleys – we didn’t know what variety they were. They are very good apples. My hubby peels and slices them for me, and then it’s up to me to do something with them. This year I’m determined to be a bit more adventurous than just stewing them. I’ve already fermented some, but my hubby doesn’t like those much. I am going to make more apple butter in the slow cooker this year, and I’m going to attempt to dry some. I don’t have a dehydrator but understand you can get good results using the oven on its lowest setting. I’m not going to have much time to attend to this for a few days, though.

I haven’t done much other stuff in the kitchen as my recent cooking days have yielded lots of freezer fodder and we’ve been noshing on that. I’m making a salad for tonight, including a sweet potato salad that I made this morning with fresh herbs from the garden, and a mixture of mayonnaise and home-made yoghurt (now being made from an heirloom culture I got online – fabulous). Once my bought mayonnaise is all used up, I’m not buying any more. My friend who got me started on fermentation gave me a recipe for her fabulous mayonnaise made from kefir, and that’s definitely the way to go. I saw a Youtube video last week where the woman said, “Read the labels on the back of foods in the supermarket. If you can’t pronounce any of the ingredients, don’t buy it!” Lol!

Have a great week, everyone.

WOYWW 444

Nothing on my desk yet again… Just when I thought I might actually get some studio time, last Tuesday afternoon my hubby slipped in the street and broke his leg. He is now in plaster from toes to knee and is not allowed to put his foot on the ground, so he’s hobbling around on crutches which is a real struggle for him. Added to this, for the first three days he was in a temporary plaster to allow the swelling to subside, and this has seriously abraded his skin, causing him a lot of pain. He’s been back to the hospital a couple of times, and at the fracture clinic they put a new, permanent plaster on, and dressed the blistered skin. On Monday they drained off quite a bit of blood from the swollen blisters and this has relieved the pain somewhat. He’s going back on Friday for his scheduled appointment, when they will re-X-ray his leg to see how the bone is knitting.

He will be in plaster from 4-6 weeks. He’s sure it will be 4 weeks, but I am a bit more realistic, given his age, and think it more likely to be 6!

This has caused a major disruption in our lives, because we are needing lifts everywhere, and during this first week I was very busy with activities and appointments out of the house, after a relatively quiet period. I was unable to attend the Ileostomy Association meeting I’d been looking forward to at the weekend, because I had no way of getting there. For other things I managed to get lifts, but this isn’t as straightforward as it might be, because I need the wheelchair, and not everybody has a large enough car to carry it. I’ve taken off the powered wheels, which are extremely heavy, and hard to take on and off, and am using the regular, lightweight ones which are easy peasy to snap on and off, making the chair easy to transport, but it makes it a lot harder work for me to propel myself. Fortunately, so far, I haven’t had far to go.

On Thursday I had my six-monthly oncology appointment at the hospital, for which I got a lift. No problems there – I knew from my CT scan in September that all was well, and my recent bloods confirmed this. We spent most of the time discussing the hernia problem that I have, and I said I was concerned that I still had not had an appointment to see the surgeon. She said she would chase this up herself, which was a relief – I thought she might make better progress on that front than I could! Still nothing, though, and it’s been another week. I’d been told I would be seen before the end of the year, but this is looking less and less likely. The hernia is larger than it was and is causing me more discomfort, and I am scared of another blockage, and ending up in hospital having emergency surgery again. What I want is a proper, scheduled operation performed by my own specialist colorectal surgeon, and I think that the way things now are, that he is more likely to agree to do this, but I’ve got to see him first!

Fortunately we got the kittens’ spaying out of the way before my hubby broke his leg. We had such a lot of trouble with both of them pulling their stitches out, necessitating numerous return visits to the vet, and this would have been a nightmare had my hubby not been able to drive. For their final appointment, I got a lift and took them down, and they had their little body suits removed, and their wounds had both healed up beautifully, and the fur is starting to grow back again. Lily has now finished her antibiotics and no longer has diarrhoea, and she seems in much better spirits; the two of them have had endless chasing games and wrestling matches, and my hubby has been sitting with them in the flat and enjoying their antics, and when they have worn themselves out, they have loved cuddling up on his lap for warmth.

They are now six months old, and have had a growth spurt! They do look a lot bigger since their body suits were removed, because the fur has fluffed up again. The vet weighed them and they are both over 2 kg each. Although Lily looks bigger than Ruby, Ruby surprisingly weighs more – she must be more dense! Lily is incredibly soft and fluffy with the most amazing fur I’ve ever felt on a cat, and she’s so relaxed and floppy when you cuddle her – I can’t get enough of it (and neither can she, it seems!). Ruby is a great wriggler and very active, and it doesn’t take her long to start fidgeting when you’re holding her, but she purrs and purrs throughout, and she will lie in my arms with her paws in the air, just gazing up at me!

Yesterday we decided that they probably needed to be eating more, so from today, I have been giving Lily a whole pouch of kitten food at each meal instead of 2/3, and she’s been wolfing it down like there’s no tomorrow, and ending up with a round little belly like a football! Since the early days, Ruby won’t touch wet food and will only eat biscuits, and I’ve increased her quantities too. She drinks a nice lot of water, which is a good thing, since she’s not getting any in her food. They definitely have their own preferences and likes and dislikes, and it’s fascinating watching these emerge as they grow. They’ve really been enjoying my hubby’ immobile company and when I’m not there, they spend most of the time cuddled up on his lap, but they always get off when I come in, and come to greet me and demand cuddles. Highly responsive, loving and affectionate kitties!

I am having a job trying to get my hubby to rest, though, and let his leg heal up properly. He has loads of things he’s arranged to do, and thinks the world will collapse if he cancels anything! Just watching him trying to walk makes me feel tired! He can hardly get in and out of the front door, and the whole effort of walking, even from his chair to the loo, is taking a lot of energy and is obviously tiring him.

When he was out a couple of days ago I had a bit of “me” time and had a friend from our cancer group around and we had a lovely chat over coffee, which was great. It made me feel more human again! She’s such good news and it was a real tonic to see her. Today I have been out for lunch with the two friends I met in hospital when we were all in together two years ago, and have remained friends ever since, and get together when we can. This also really helped keep me going!

I’ve also started doing some Christmas cooking which is very therapeutic – over 2 dozen mince pies yesterday. It is tiring though! Over the next few days I’m hoping to get the stuffings made, and some other advance preparations that can go in the freezer. It’s been over 10 years since I’ve cooked a Christmas dinner and for the first time I feel well enough to tackle it, and I shall really enjoy it, even though it’s just for us two! It’s so lovely being able to spread the load and freeze things in advance, and I shan’t be making a pudding or a cake – Lidl does such good ones, and very reasonably priced, too. I love the aftermath, because you get all that fabulous cold meat that you can do so much with, and above all, the carcass from which you can make gallons of delicious soup! I’ve bought a medium-sized turkey and this will keep us fed for ages into the New Year. There’s absolutely nothing like home cooking!

No time this week to make much progress on the second pair of socks I am knitting for the homeless but I’ve been assured the project is going on after November, and anyway, there is someone in our church liaising with the groups helping the homeless, so there’s nothing to stop me continuing after the official programme ends. Here’s a picture of the socks so far – I’ve completed the first one and made a start on the second. They will look less lumpy after they have been blocked.

The House of Marbles

Recently, a problem has arisen between Windows LiveWriter, my preferred blogging software, and Google Blogger, and I have been unable to publish any new blog posts since then. Now, thanks to the valiant efforts of a team of volunteers, Windows LiveWriter (which Microsoft is no longer supporting) has been launched in an open source format as Open LiveWriter. The team has been working hard to iron out the various glitches over the past week or so. This is my first post using the new software, and is also by way of a test to make sure everything is functioning as it should. So far, there is no facility for adding categories, but we are hoping for this to be available soon, after which I shall edit this and subsequent posts to include these.

It has been a long time since I posted to my blog. My creative mojo is still distinctly absent, and my health remains about the same – still feeling pretty fatigued and the peripheral neuropathy and other neurological symptoms from my chemo still around, but I live in hope that all this will soon be diminished.

We have had a busy couple of weeks with several meals out and meeting up with family and friends, in the run-up to Christmas. Hoping for a fresh start in the New Year, getting my life back to some sort of normality!

On Monday, my hubby thought we needed an outing, just the two of us, for a treat, so he took me to the House of Marbles at Bovey Tracey.

I do not feel as if my Christmas is complete unless I go and see their wonderfully tasteful (not!) Singing Christmas Tree:

 

The House of Marbles has a glass-blowing workshop, a shop, gallery, museum and restaurant. Plenty to see, and excellent food.

We began our visit by going to the gallery and museum. The gallery has a beautiful collection of art glass pieces which are all for sale.

I love these organic forms.

In the museum they have glass from many periods. Here is some Lalique glass, which I adore – one day I would love to own a piece of genuine Lalique!

Glass eyes!

Some beautiful lead crystal.

On the outside of the building is a series of murals. I love how the little girl in this one is peeping in at all the customers in the shop, and the other girl is pressing her nose against the glass.

In the restaurant is an animated jungle assembly, and this mural depicts that. I am very intrigued by trompe l’oeil (literally “deceiving the eye”) and have done a bit of this myself on the murals I created in our old house. Particularly intriguing in this picture is the way the edges of the bricks are painted to capture the perspective, with the tops of the lower bricks being visible, and the bottoms of the bricks at the top.

This mural depicting a hole in the wall crammed full of marbles on the left, shows that to get the proper effect of trompe l’oeil, one has to stand in one particular place to view it, because although the picture represents something in three dimensions, the drawing itself is flat. You can see that the edges of the bricks, photographed from this oblique angle, do not work, and it looks all wrong! The mural on the other side of the corner shows a real mastery of perspective with the brickwork receding towards the vanishing point somewhere in the clouds. I love how the artist has incorporated the opening times sign into the picture. Unfortunately the Christmas lights in front of this mural are obscuring it somewhat.

Mural depicting the glass blowing workshop. Great perspective again.

Finally, another fun “hole in the wall” mural showing children playing with marbles. I love the kid on the right, wearing the sweatshirt of a local school, and the pair of feet disappearing over the wall in the background!

On the roof of the building is an animated Santa who moves his arm, waving at the customers below.

We had a great lunch in the restaurant (which is part of the old pottery) and I was very unadventurous and had yet another Christmas dinner – turkey and all the trimmings followed by Christmas pudding! (About my third or fourth this year… I am not cooking a Christmas dinner this year and didn’t want to feel deprived.)

My hubby had booked a table because we knew the place would be very crowded this close to Christmas, and we were seated at a table for four. He said to the waitress that if another couple wanted to join us to avoid waiting in the queue for a free table, we would be more than happy to accommodate them, and a delightful couple came to join us and we chatted together throughout the meal. They ended up by giving us their address and contact details and inviting us around to their house on the evening of Christmas day!

When they left and my hubby went to pay the bill, another family came to occupy our place. They were an older couple with their daughter and her baby. The man was a wheelchair user and we got talking about our disabilities and wheelchairs, and I told him I’d had quite a year of it with bowel cancer, and now had a stoma, and he said, “I’ve got one too!” so we ended up talking about that, too! They were a delightful family.

I am always amazed at how many great people one can end up meeting while out and about. Having flowers and decorated spoke guards on my wheelchair has brought so many people over to me, full of smiles and nice comments, and it’s made my day, and theirs. Without decorations on my wheelchair I am overlooked and feel quite invisible.

On the way home we called in on some friends at their business, where they and all their staff and some other friends had gathered to sing carols and eat mince pies! After this we called on some friends at home where we had another cup of tea and enjoyed their company (and that of their relatively new kitty who I had not met before) before returning home. It was such a lovely day out.

Yesterday we had another outing when my hubby took me to Sainsbury’s! It may not sound very exciting to most people (grocery shopping just before Christmas isn’t most people’s idea of fun!) but I can’t remember the last time I went in a supermarket – I always do my shopping online, and for most of this year my hubby has been going out shopping for me. As usual just before Christmas, all Tesco’s delivery slots had been taken so we had to go out to do the shopping. It wasn’t nearly as crowded as I’d expected, and I really enjoyed the experience. As well as the normal weekly shop, we stocked up on a few party bites and treats to have as our Christmas dinner. The only thing that blighted the outing was the fact that it was pouring with rain…

All being well, from now on I should be a bit more active in Blogland, and hopefully I will soon be back in the studio with all my creative juices flowing again.

My New Buggy, and an Outing to Brunel Woods

Today, after many months’ waiting, the new buggies arrived in the mobility shop. Some time ago, I inherited my uncle’s big buggy which is a very, very good one; very powerful, very comfortable and goes a long way on a single charge.

However, there is a major problem with it, and that is, it is much too big and heavy to go in the car. It is fine for getting to the shops, or to church – launching forth from the garage at home as you can see in the above photo.

However, many of the outings we go on involve going in the car. We belong to the National Trust, for instance, and if we have a day out, visiting one of their properties, the wheelchair is ideal for indoors, and for sitting in the restaurant, but not so good for going around the grounds – despite the power assist wheels, after a fairly short distance, I become too fatigued to self-propel any longer. My hubby has never forgotten (and never lets me forget, lol!) that time we went to the zoo, and he had to push me all the way up the hill to see the tigers! Last time we went to the zoo, the other day, we hired one of the zoo’s buggies and this was ideal.

So what we needed was a smaller, lightweight buggy that could fold up and go in the car, and still leave room for the wheelchair. We visited our local mobility shop, and I tried out quite a few. You really do have to try them – it is too risky to buy a buggy off the Internet, for example, without trying it, because however comfortable it may look, everyone’s body proportions are different, and what suits one will not necessarily suit another. The problem with the ultra-compact foldable buggies is that most of them are not adjustable at all, because this would interfere with the folding mechanism, and most of them were simply not comfortable enough. My arms are too short, which always causes problems, and having to reach further than is comfortable is very fatiguing. Some of them had really uncomfortable seats, and with the small wheels, many of them provided a very bumpy ride.

There was one that was different, though, and this was the SupaScoota. The control column is adjustable for height, and fore and aft angle, so that with it tipped towards me, and the whole thing raised, it was within easy reach and comfort for my arms. The battery is very powerful and it fairly zips along, with a choice of two speeds. With the seat removed, the control column can be folded flat against the base, and even with my adjustment, it still folds OK. Removing the battery makes it lighter for my hubby to lift into the car.

When we first tried it, the only drawback was the awful seat! As you will see from this photo:

The seat is triangular, and very uncomfortable, despite the sprung suspension. I was very disappointed, because apart from that, the rest of the features were ideal for me. The man in the shop told us that the manufacturers were about to bring out a new model with an improved seat, which was rectangular, and with a better back support. The buggy would also have an automatic setting that caused it to slow down when you turn a corner, but there would be a button to override this feature. We were very interested in this new model, and he said they would be getting some in soon. This took months longer than we’d hoped, but they knew we were interested, and let us know as soon as the prototype model arrived in the shop, and we went to try it.

You can see how much better the new seat looks. The foot rests are also larger. This is the four-wheel model (which we chose), but there is also a three-wheel model, and you can also have the extra “training” wheels for the front if you want. The new model is actually gold, not orange, and I much prefer this colour.

Here is a video of the original SupaScoota – the new model is so new that there aren’t any videos yet. (Perhaps we ought to make one!!) The new model is slightly easier to disassemble and fold, but apart from the new seat and suspension, the details are pretty much the same as on the video. I chose this Youtube video from Canada because it seemed to show best how the buggy folds up, and a lot of its features.

I tried the prototype in the shop, and after the control column was adjusted for me, I absolutely loved it! I took it for a good little spin outside, and my hubby practised taking the seat off and folding it up, and if he removes one seat from the back of our car, it will go in beside the wheelchair with no problem at all. He can also use the crane in the back of the car to lift it in. So we paid a deposit, and we then had another long wait, until this morning when the shop phoned to say they were in at last.

We went to collect it, and I am one of the first people in the country to get this new model – apparently there are only two shops that supply the SupaScooter – our local one, which is the importer, and another shop which I think he said was in Hampshire. Afterwards, as it was such a beautiful spring day, my hubby took me on an outing to try it out – this was by way of an experiment for him, too, to see how well he could get it in and out of the car. We went to Brunel Woods, at the entrance of which is a kissing gate to prevent mountain bikers invading the woods. This makes it very disabled unfriendly! There was no way my hubby could get my wheelchair through, but today, he tried the disassembled buggy – it was a bit of an effort but he managed to lift it over. He said afterwards that if he’d removed the motor as well as the battery, it would have been a bit lighter.

Off we went, and it was pretty steep! There was also a thick covering of beech nuts on the ground, and at one time I did lose control a bit and started sliding back! It was only when we got home that my hubby read in the instruction manual that you shouldn’t take it up a slope steeper than a certain number of degrees (and we were sure our path was steeper than that!!) and also that it should be run on a firm surface! So we broke all the rules on Day One lol! Anyway, we put it through its paces, and it was fine.

In Brunel Woods there is an extraordinary collection of wood carvings in honour of our greatest engineer, Isambard Kingdom Brunel, the central feature of which is a dead tree trunk which has been carved into a totem pole, depicting all the things that I.K. Brunel constructed. It is surrounded by three more carvings, one of which is a statue of the great man himself.

Here is my hubby with I.K. Brunel, which gives a sense of the scale of the carvings.

Here is the totem pole, a bit closer up.

At the base of the totem pole, the date when it was made has been carved.

After admiring these things, we went for a wander in the woods. The sun was shining through the trees, and all the birds were in full song. There is something about birdsong in a wood – it echoes off the trees, and sounds so full and rich. In a few weeks’ time, these woods will be full of bluebells! To me, there is nothing more beautiful than a beech wood with a carpet of bluebells, with the sun filtering through the translucent, young green leaves of my favourite tree. If the oak is the king of the English wood, then the beech must surely be the queen.

Finally, here are some pictures of me using my new buggy. You can see that there is a bag on the back of the seat – we had hoped that the bag from my big buggy would fit, but it wouldn’t, so we got the one to fit this mini-scooter while we were at it. The basket on the front is actually surprisingly capacious – better than the one on my big buggy, but I shall still need to be able to carry more, especially after my operation when I will need to carry my emergency kit with me, for bag-changing etc. There is also room underneath the seat for another basket if I want it.

You can see from these photos how the control column has been adjusted to suit me. (Note my new hair colours!! Also, the felt poppies hair clip I made last year in the felt class.)

It’s a very nice, zippy little buggy and will do just fine for our outings, enabling us to go further afield and not be tied. It isn’t quite as comfortable as the big one, but with its improved seat and the sprung suspension, it’s not at all bad.

Today was another of what my hubby calls “spoilies” before I go into hospital. We were so pleased that the new buggies arrived before I went in! We have now got it all ready for when I am better enough to go out and about again. Another purpose in the second postponement of my surgery, perhaps?

Talking of which, having had nothing in the post from the hospital today and it being Friday, I thought I would phone them just to see if they had any news, and I spoke to Mr. Pullan’s secretary. She said he would be away until Tuesday. I asked her to phone me as soon as she had a date for my admission, and she said that would be fine. She said I was already at the top of his list, and it looked likely that I would have it done a week today, Friday 27th March, which would be exactly a month after my first scheduled admission on 27th February. (I am getting a bit concerned at the delay now, because that’s another whole month for the cancer to be growing… However, if they were worried about that, they would have got me in urgently and I’d have had another surgeon to do it.) She obviously could not confirm this date in the absence of Mr. Pullan, but hopefully we will get definite confirmation as soon as he returns to work.

Disabled-Friendly Housing

For several years I have subscribed to the newsletter of the Leonard Cheshire Foundation, and yesterday I received an email detailing a petition for the provision of disabled-friendly housing, that all new houses should be built fully accessible for disabled people. I would also add that I think every new building should be built like this – if everything was suitable, and every loo accessible, there would be no need for “special” facilities for what is actually a large proportion of the population, and we could be fully integrated. After all, if we can go everywhere the able-bodied population can go, there is then no difference between us. I have heard it said that it is only the attitudes of the able-bodied that make disabled people “disabled” at all! Fully accessible facilities would also benefit the elderly, and mothers of small children – every level of our society, in fact.

The lady who started the petition is living in a council house totally unsuited to her needs. A few years ago she was able to access every part of her house. She suffers from fibromyalgia and one day she fell down the stairs which led to a worsening in her condition, resulting in her having to use a wheelchair full time. From that day forward, she could no longer go upstairs in her house. She sleeps in the living room, and every day carers come in to strip-wash her at the kitchen sink, in full view of her neighbours’ houses. The toilet door has had to be removed because otherwise she cannot get the wheelchair in, and if anyone is in the house with her, she has to ask them to leave so that she can go to the toilet in privacy. She has access to only 3 rooms in her house – the kitchen, the lounge, and the downstairs loo. She cannot even get into the garden because there is no ramp.

Is it right for someone to be so completely imprisoned in their own house, with all her privacy and dignity stripped away? She spoke at the recent Conservative Party Conference and was encouraged by the response.

You can read her story, and view the short video she made, here.

I should like to encourage as many of you as possible, who read my blog, to sign the petition. I have always said that a civilised society should be judged by the way it treats its most vulnerable citizens. With a change of attitude, this lady, and many more like her, could be living full, dignified, independent and productive lives. The Leonard Cheshire Foundation, which campaigns for the basic human rights of disabled people in this country, states that there are thousands of people living in Britain today who cannot access their bathrooms and who have to wash in the kitchen.

Daily I count my blessings. We live in a beautiful house which we were able to adapt to suit my needs when we first moved here. Most disabled people are not nearly so fortunate, and today live on a knife-edge financially, as well, with the reform of the benefits system, which while it seeks, quite rightly, to weed out the criminal abuses, is also adversely affecting the lives of thousands of vulnerable citizens who depend absolutely on benefits in order simply to survive, let alone live a life of dignity. In a programme broadcast shortly after the Paralympics in 2012, Ade Adepitan (ex-Olympic basketball player) stated that the majority of British Paralympians were in receipt of disability benefits, and could not have made it to the Olympics in the first place without them.

Something to think about, isn’t it. We so often take our circumstances for granted and forget the incredible hardships our neighbours endure on a day to day basis.

Our New House–Final Jobs

After the builders left last year, there were a few problems that developed in the ensuing months, and yesterday Andy phoned to say that at last they had a day between jobs, when they could come and tie up these odds and ends. He and Paul arrived early this morning, and it was quite like old times having them around again!

The main job that needed attention was my bath in the en-suite bathroom. This free-standing bath came with no fitting instructions, and Paul did his best at the time, but I found that the bath was moving if I leant on one side, and then a few months ago I was showing some people around the new house and one of them sat on the end of the bath and it all started to tip up! As a result of this I was very loath to use it in case the movement had caused any breach in the waste, which would cause a flood. Paul did come back and try another tactic to fix it but it didn’t work, and today he finally fixed it for good, by attaching two L-brackets to the side of the bath and onto the floor – very difficult to get at behind the bath! Unless you look behind the bath, you really can’t see them, and it now feels rock solid. Very pleasing! I did warn Paul not to drill right through the second skin of the bath and make a hole right through, because I didn’t fancy pretending to be a little Dutch boy every time I had a bath, plugging the hole with my finger!!

The grab rails in my bathroom that came from Amazon look brilliant, but the design was awful – they were a real pain to fit, and the covers kept popping off. Paul did glue most of them down but he said that a couple of them seemed to be OK so he didn’t bother. In the meantime they have both popped off, so he has now glued them like the others, so they won’t shift.

Finally in the en-suite bathroom, the counter Paul had built for me had settled very slightly, pulling the grout away, so he has now gone right around with silicone caulking and it all looks very neat. It won’t be fully cured till tomorrow morning so meantime a lot of my bathroom stuff is back in the bedroom!

My hubby has been complaining recently about the electric shower in his bathroom being far too weedy to be any good. It is obviously pretty old, and rather than trying to repair it, he decided he’d like a mixer shower tap fitted to the bath, so Andy turned up today with a second-hand one from his store, for which he charged us a very reasonable sum. It looks great on the bath! The hose from the electric shower is visible on this photo, but my hubby has since unscrewed and removed it. We are leaving the actual shower in place, because to remove it would involve making a mess of the wall. They also fitted the poor old chap a grab rail – he’s feeling his age since his retirement!!

In my ARTHaven, the grout had also cracked away around the sink, so that is now beautifully finished with silicone caulking. Also, a few months ago, the head of the tap fell off! It is an extending tap with a hose, and I was able to manage jut using the hose, but Paul has now re-attached the tap with his special super glue. I had pointed out to him a little lug on the underside which fits into a corresponding groove in the main body of the tap, but he forgot about it, and glued the tap on so that if you engaged the lug in the groove, the tap was pointing at the ceiling! He said that as soon as he’d done it, he remembered, but by then it was to late, as the glue had set. While I did agree that an indoor fountain may be attractive, it wasn’t really what was required! In the end Paul cut the lug off altogether, and the result is better than before – the tap can now be located in any position without the inner pipe showing, and it’s now working absolutely fine again.

In the office section, the two long shelves they had fitted were certainly showing their inability to cope with the heavy loads I imposed on them, so they are now strengthened with a wooden batten, and additional supports have been fitted.

In order for this work to be done, I obviously had to take everything off the shelves, and clear space for them to work. All this stuff was dumped in my ARTHaven:

Lovely mess, isn’t it. I am not intending to put it back until my hubby has had a chance to measure a rug we’ve got in the loft. If it is suitable, I shall move the bookcases in the office so that I can lay it down, and it seems sensible to do all this while a lot of the stuff is out of the office anyway. The reason I want a rug is that the laminate floor is rather slippery and offers no resistance to the castors on my office chair, which tends to scoot around all over the place when I want it to remain stationary! This has also proved to be a major problem in the ARTHaven proper, so I am unable to use my lovely comfy revolving chair, which is now just taking up space. Instead, I am using my old wheelchair (with the foot rest removed) – I can lock the wheels and it stays put. It is also very comfortable!

Moving everything out of my office has made me realise how dusty everything was, so I’m also taking advantage of this situation in order to clean up a bit in there. We are out tomorrow so I won’t be able even to think about it till Thursday and probably not then, because I will probably be too tired after our outing.

The final job was to fix Mum’s new door. They had fitted this when they replaced the window with a smaller one, so that she would have independent access into her little patio and wouldn’t have to come through our part of the house to get out. The trouble is, she simply can’t get to grips with anything mechanical, and these modern doors are more complicated to work than old-fashioned ones – she found lifting the handle in order to lock it quite incomprehensible, and somehow kept managing to lock the door when it was open, so that the lock projected and prevented the door from closing at all. She then kept banging the door incessantly, trying to make it close, and making the whole house shake in consequence, and the result was that the door wouldn’t close at all without an effort – she had obviously forced something and it was out of alignment. Paul whipped the hinge covers off and adjusted the hinges, and it now works like a dream! The trouble was, Mum then said she’d be able to lock it again herself, and I had a terrible time persuading her NOT to do this, but to continue to rely on my hubby and me to do it for her each evening. We don’t want a recurrence of the problem!

So all in all, a good day, with lots achieved. All those little niggles are now sorted!