Here's a video a friend has just told me about, which points up some of the problems we have to deal with as far as M.E. is concerned.
Of course, not all people with M.E. suffer the same symptoms that Bond Girl suffers from - the symptoms are many and varied, but several are shared by us all (the post-exertional malaise, overwhelming exhaustion, pain in varying degrees, sleep problems etc.).
After my busy day at the SW Disability Show yesterday I'm suffering payback today, and have spent most of the day resting, but that's OK - I'm not prepared to simply stop doing things I enjoy just because they make me worse! The secret is striking the right balance and not consistently overdoing things, which will have a serious knock-on effect - the occasional bit of rash enjoyment is always worth it!!
One day this disease (not a "syndrome") will be recognised for what it is by the medical profession and by health ministries and governments. Until then, we must continue the fight to spread correct information, to inform, and to educate. Please spread the word. We need you.