2014–What a Year

WOYWW visitors – please scroll down to the first post for today.

The second of three posts for today, and the first of two “update” posts – I realised there was going to be too much for a single post, because such a lot has gone on this year. I have therefore decided to devote this first one to personal and health issues and other miscellaneous things, and to make a new post about my creative endeavours during the year, of which there have been many!

I can’t believe it’s that time of year yet again when I look back on the months that have passed and take stock, and look forward, hopefully always with optimism, to the year ahead. This is the fifth annual review post I have made – have I really been blogging this long???

We have celebrated our first year living in our new house, and reaped the benefit of so many months of upheaval, anxiety, stress, joy and fun that took place during the previous year, during the renovations, and this year we have been able to enjoy to the full all the carefully planned alterations which have made life easier for everybody.

One of the things which has been the most fun was finally to be able to move into my beautiful new ARTHaven and get it up and running and planned exactly how I wanted, so that it at last became my favourite room in the house, where I can immerse myself in art and creativity and shed the stresses of the day, in an environment carefully designed and planned by me, and brought to fruition by our wonderful builders, to enable the creative process to take place with the minimum of difficulty.

Heath Issues

The year 2014 has been characterised by a series of health crises for us all – myself, my hubby and my mum, who lives in a flat occupying half the downstairs of the house. Just when we seemed to be entering a more stable period, something else happened, until I got to the stage when I wondered, “What next?” I know that compared with some people, our trials have been light, but nevertheless sometimes they have seemed hard to bear.

At the beginning of the year, now that we were really settled in, my hubby went up country to pick up my buggy (mobility scooter) which had belonged to my uncle, and this was installed in the garage with its own power supply, and enables me to trundle forth at the magnificent heartstopping rate of 4 mph to do my local errands – church, shopping, visiting etc. This is liberating!

In February I caught a nasty throat infection which left me coughing for months, and eventually in the summer I saw the doctor about it, and it became clear that the cough was a result of GORD (Gastro-oesophageal reflux disorder) and I was put on medication for this (Omeprazole) and referred to an ENT surgeon at the hospital for a proper examination, which revealed that there was still evidence of inflammation so I was put on revolting Gaviscon which is a sore trial to take!!

In the summer I also had problems with an extremely dry mouth, but after seeing another hospital consultant, a disease cause was ruled out, and we came to the conclusion that it was just another recurring M.E. symptom raising its ugly head again. I was given some good advice, though, about nasal decongestion which has helped a lot.

I suffered very badly this summer with swollen ankles and again sought medical advice. Several pieces of advice bore good fruit, and I also invested in a Circulation Booster which helped a lot. The cooler weather helped considerably, later on.

Since our return from holiday when I was shocked at how much weight I’d gained, I decided to embark on the famous 5:2 diet, and am happy to report that having hit another plateau recently, with my weight remaining constant for several weeks, I have lost a total of 2 stone 3 lb (31 lb) in six months. I have another 2 stone to lose until I am at the optimum weight for my height, but it is great knowing that I am now officially “overweight” and no longer “obese”!

In the summer also, I was diagnosed with mild anaemia, probably as a result of my ongoing ulcerative colitis, and have been on ferrous sulphate ever since, although now on a reduced dose, with my Hg levels being checked monthly.

In August I had my regular gastro-enterology appointment at the hospital to check on the state of my ulcerative colitis, and I have a colonoscopy coming up in January 2015 (something that has to happen every 2 years). He is pleased with my progress and how I am responding to the medication (Pentasa (mesazaline)).

However, my main health event of the year was a coronary artery spasm causing severe chest pain at the end of July, landing me in hospital for a couple of days. I’ve had no recurrence since, apart from a few periods of much less severe chest pain, all of which have been brought on by stress. I have a nitro-glycerine spray for such events. Coming out of hospital I became a soggy emotional heap, and when that passed, I moved into a period of several months’ mild depression, feeling generally “out of sorts” with myself, which is apparently a very common reaction to any cardiac event.

My M.E. continues much the same. The condition appears to have “bottomed out” and while I am not improving, neither am I continuing to go downhill as I did at the beginning. I have many days when I am pretty well unable to function and need to rest, which can be frustrating at times, but there’s nothing to be done about it and one just has to go with the flow and try and be as sensible as possible. Having a new adjustable bed is giving me more comfort and better nights and I no longer hanker after my wonderful hospital bed that I wanted to take home with me! This is also helping a lot with the reflux. Life is certainly easier with the renovations we had done in the house to suit my needs and also that my hubby isn’t having to run around after me quite so much as in the past.

A few weeks ago my hubby had an accident on his motorcycle and broke his wrist. He was in plaster for several weeks, and is now wearing a wrist splint after the latest X-ray revealed that the bone had knit. He will have another X-ray in a couple of weeks’ time and hopefully then will be back to normal. It feels painful now the rigid support of the cast is gone, and it will take time for it to regain its full strength. The worst part of it from our point of view was that he was not allowed to drive with a cast, and with all the running around he has to do on our behalf, this added to the already considerable inconvenience for him.

Mum’s health has presented us with several crises this year – firstly the common occurrence of minor injuries to her paper-thin skin necessitating hospital visits and the regular and frequent re-application of dressings. She is now very deaf and also needs her ears syringing regularly. She has also started suffering a series of TIAs (mini-strokes) and has been diagnosed with AF (atrial fibrillation) and is now on warfarin, which necessitates weekly visits to the surgery for her blood to be tested to determine the dose. Her short term memory is poor, and since her most recent bout of TIAs she has become more difficult, which is stressful for me, and my dear hubby is trying to shield me as much as possible, by taking on most of the contacts with her. We both experience ongoing low-level stress, interspersed by the high-octane version brought on by frequent confrontations with Mum on various issues. How true it is that whatever one’s personality, this tends to be exaggerated in old age.

It wasn’t just us humans in the family who had health issues this year. Our senior kitty, Beatrice (aged 14), after being registered with our new vet, had four teeth extracted, and was discovered to have a growth in the back of her neck that had to be removed, which proved to be quite major surgery, but was fortunately proved to be non-malignant. In order to protect the wound, she wore a premature babygro!

Then followed a series of urinary tract infections which have become ever more frequent so that she is more or less constantly on antibiotics now, but keeping pretty well, and with a good appetite. She is too thin, and with her delicate stomach has to be on a prescription diet, and requires frequent small meals in order to prevent vomiting. She continues to be a great character and much loved by us all, and she and “Granny” have developed a strong mutual affection and she enjoys spending time with Mum in her flat. The vet, “Uncle Luke,” is extremely fond of her, and everyone down at the vets’ has a huge soft spot for this very unusual kitty who is bursting with character and a bit too intelligent for her own good sometimes!!

All these health pressures have definitely been helped by having my hair permed again in the summer! Luuurve the curls. Thank goodness for good hair days, fragrant baths, kitties, art, and my wonderful hubby.

Technology

I was devastated this year that my faithful old sewing machine (21st birthday present) bit the dust, but delighted to get a new Brother machine, which, as things have turned out, I haven’t had a lot of time to get up and running – just a few boring household jobs to be done, and I still have to look up in the book how to thread it!!

At the beginning of the year I invested in an iMac and after an initial trial period trying to run both the Mac OS and Windows on it via a system called Parallels, eventually came to the conclusion that Windows didn’t work well enough on this for me, and I would continue with my two (now fairly elderly but excellent) laptops for Windows, and use the Mac pretty well exclusively for video. I had a brief experience with an upgrade to the latest version of Pinnacle video editing software on Windows but as with earlier versions, was frustrated by its instability, and decided to bite the bullet and move to Final Cut Pro for Mac which has proved to be a very successful move indeed. With my new video camera setup I can now produce good quality HD videos and the program is a total dream to operate – makes me wonder why I didn’t stop messing about years ago and spend the money and get serious – I’d have saved a great deal in the long run! I have not had as much time to create videos this year as I would have liked – it is a highly time-consuming process but also very creative and enjoyable.

The House

Finishing touches to the renovations included the installation of solar panels in the summer. We had been at a bit of a loss to know which company to approach, but our visit to the County Show was very fruitful, as we were able to speak one-to-one with several companies and come home armed with fliers. It was not hard to make our final choice, and the work went ahead very smoothly.

Personal

The major event of this year was my hubby’s retirement in the summer. He continues to be quite overwhelmed by the tremendous send-off he received, and all the gifts, cards, letters, emails etc. etc. I was a bit worried that he might feel the loss of role quite badly but he has had an incredibly busy time since, being carer for both Mum and myself, and various other commitments, but I am glad that he has been able to fit in quite a few days out doing the things he enjoys the most, and spending time with his friends. In the summer, for the first time he was able to volunteer on the local annual archaeological dig on a full-time basis. Knowing how precious these times are for him, I guard them jealously and try not to add to his commitments by asking that he drive me to things that aren’t strictly necessary, but we have had some nice outings together, and had a wonderful holiday (our first for 4 years) in the summer, coinciding with my school reunion, and the opportunity to immerse myself in some fabulous art. Our major and best day outing was to Bristol to view the Kaffe Fassett exhibition (click on the link at the top of my sidebar for pictures).

Since moving here, I have found an excellent church to join, and was admitted to full membership in the summer. I am thrilled that is is right on the doorstep and takes only a few minutes on the buggy to get there. I have made new friends there and the quality of worship and teaching is excellent.

Health Update–September 2014

Following my last health update, I have been taking the Omeprazole for some time now, and it definitely seems to be helping with the reflux, although I am still aware of something at the back of my throat. I am not coughing as much, and haven’t been disturbed at night by acid in my throat, but the GP said I should definitely see the ENT surgeon just to make sure everything was OK.

I had my hospital appointment today, and after a brief consultation he shone a light in my mouth, and palpated my neck. I thought that was going to be it, but no… he then sprayed some local anaesthetic up my nostril and proceeded to poke a light up my nose!! It was very small, on the end of a flexible tube, but despite the local anaesthetic, it felt like a lamp-post! It was pretty unpleasant. My nasal passages are apparently very narrow (which would explain why my nose is so often blocked). He said he needed to examine my vocal cords and the back of my throat in general, and said that there was still evidence of reflux there.

He prescribed Gaviscon Advance for six weeks, and said to continue with the Omeprazole, and then see my GP. The Gaviscon puts a blanket layer over the top of the stomach contents, and along with the acid-reducing Omeprazole, this should sort the problem. He also recommended propping the head of the bed up on bricks to elevate my upper body so my hubby is going to sort that – although what it will look like I don’t know – it’s a four-poster and might look like a ship on the high seas!

I saw the gastroenterologist a few weeks ago about my ulcerative colitis, and he continues to be pleased with my condition, which is responding well to the Pentasa medication. I had thought that my next colonoscopy wouldn’t be until August 2015 (two years after my first one) but he wants me to have it in February, which will be something nice to look forward to after Christmas (not…)!

Following a recent blood test, I have been told I am still mildly anaemic, so continuing with the iron for another few weeks. I am probably bleeding from the bowel although I’m not aware of it, but it could be enough to lower my haemoglobin sufficiently to need medication.

I bought a circulation booster from Ebay and it really helped with the swollen ankles. Now the weather has cooled off, the problem really isn’t so bad, and I have stopped using the machine for now, but it’s there if I need it.

Since my recent heart attack, I haven’t really been feeling myself – not exactly depressed, but feeling under the weather and a bit down, and rather unsettled. This is very unlike me because I’m usually very upbeat and bubbly. My creative mojo seems to have departed a bit recently, too. I had put it down to the constant low-level stress I suffer from with Mum in the house, but the other day I thought to myself that whenever I’ve had a day feeling like this, after a good night’s sleep the feeling generally disappears, but recently this has not happened. I mentioned it to my hubby at this point, and he said he wished I’d said something before, because he knows that it is very common indeed for people to get depression after a heart attack. I had no idea, but since then have spoken to several people who have experienced it. My hubby told me to Google it, and 18,900,000 search results appeared!!! He said, “Well, get reading then…” and I said if I read all that lot I’d be severely depressed by the end, not to mention still being at it well into the New Year!! It made me feel a lot better knowing that this was quite normal, and although I felt very down a couple of days ago, I’m feeling very much better again today.

I think I have to accept that it’s going to take time, and that my whole system suffered more of a shock than I was aware of. The most important thing is not to worry, and to know that it will pass. I don’t feel it’s bad enough to approach the doctor with.

My M.E. is ongoing, of course, and fluctuates from day to day, but there’s nothing new to report there, except to say that the dry mouth problem was probably a recurrence of this very common M.E. symptom, which has now gone into abeyance again. I have been continuing with the Sterimar routine before bed, and making sure my nose is as clear as possible before I go to sleep, and this is helping.

Ending on a cheerful note, I have been doing the 5:2, or “Fast” diet since our return from holiday towards the end of June, and am happy to report that this is the most brilliant diet I’ve ever been on. Because you reduce your calorie intake on only two days a week, and eat normally for the rest of the week, it is sustainable. Having to watch one’s diet every day, and deprive oneself of all the things one enjoys, soon becomes very tedious, and this is why so many people give up, especially when the weight loss tends to plateau, sometimes for several weeks.

I have had a three or four week plateau when I lost no weight, but I’ve stuck with it, and over the past couple of weeks, the weight loss has started again, resulting in a further half-stone coming off! I have now lost a total of 1 1/2 stone since June, and I am highly delighted. It doesn’t seem to be showing much – at least, not where I want it to (my stomach and bum) but one or two people have asked me if I’ve lost weight as it’s showing round my face, apparently!

So, generally speaking, I am pleased with how things are going. I am hoping that will be the last of the hospital visits for the rest of this year, at least for myself!

Mum, on the other hand, seems to be constantly going to the hospital or GP surgery these days. She had a TIA (transient ischaemic attack, or mini-stroke) a little while ago and has been undergoing tests since then, resulting in a diagnosis of atrial fibrillation (AF) and she is now on Warfarin, necessitating a weekly blood test until they stabilise the dose. Her blood pressure continues to be very high, and she is therefore at increased risk of another TIA or more serious stroke. She has bashed her leg again… and a few weeks ago, Phoebe, one of our kitties, scratched her arm, both of which needed an A&E visit and dressings which required changing – each time she has such an injury to her paper-thin skin, she digs her heels in and refuses point-blank to go to the hospital and we have to go through the whole process every time, of my hubby getting really stroppy with her and bullying her into submission! She never learns… she has no idea how serious such things can be at her age (93), and how they could easily get infected and lead to ulceration and worse. Oh well, my sister can deal with it for 10 days – we are currently enjoying a lovely break! After everything that’s happened recently, I think we deserve it – my hubby especially, as he is the one who has to drive her, and pick up all the prescriptions, etc.

Health Update

I had an appointment with my GP (family doctor) this morning, following on from my recent hospital appointment – I have been having problems with my mouth and throat. I suffer from a dry mouth especially at night, and this is probably partly due to my M.E. and partly due to nasal congestion – I have to spend some time every night clearing my nasal passages with Sterimar (an aerosol saline solution). Also, I had a throat infection back in February and since then I have not been able to throw off a chronic irritating cough, the production of mucus and a constant feeling of a lump of catarrh at the back of my throat which I am unable to clear.

My hubby has been telling me lately that I am making a lot of noise while asleep – not exactly snoring but a sound as if I am struggling to get enough breath.

I mentioned the lump in my throat to the hospital doctor but she couldn’t find anything and only recommended continuing with the saline spray to clear my nose and prevent mouth breathing, which should help the dry mouth. She ruled out Sjorgren’s Syndrome.

The GP was very helpful, and agreed it didn’t sound like obstructive sleep apnoea which my hubby suffers from – she asked if he could hear me stopping breathing altogether when asleep, which he couldn’t, and I don’t suffer from the same daytime sleepiness which featured so strongly in his condition before he started with the CPAP breathing mask.

She asked if I suffered from acid reflux, and when I said yes – I get bouts of this and according to my GP where we used to live, this is probably caused by my M.E. and is the result of the sphincter at the top of my stomach not closing properly. The GP today said all my symptoms were characteristic of reflux – the acid contents of the stomach can cause inflammation and irritation at the top of the oesophagus and give rise to a feeling of swelling and a chronic cough. She has prescribed Omeprazole, a slow-release medication which reduces the acid concentration in the stomach, for the next four weeks, and we have to see how it goes. If it works properly, it should prevent the reflux and give my throat a chance to recover. If the symptoms persist, she will refer me to an ear, nose and throat specialist who will take a proper look at my throat, and take it from there, with any treatment based on what they find.

I also mentioned my swollen ankles, and she confirmed what my old GP said, that I should keep my legs elevated as much as possible, but obviously I can’t be on the recliner all day as there are other things to do when I’m well enough! She said that my lack of mobility is the main cause, because walking exercises the calf muscles and keeps the blood flowing, and without it, blood plasma can leak out from the blood vessels and pool in the tissues, causing the oedema and discomfort. She said that it was most unlikely that my left bundle branch block (chronic heart condition) would have any effect – since being less mobile this condition has been completely asymptomatic and I tend to forget all about it. She said being female was against me, and also the heat – both of which exacerbate problems with swollen ankles. She said support stockings might help but I said they would be terribly hot – I wore my travel socks when we drove up to our holiday venue, which helped, but I did get very hot! She was reluctant to put me on diuretics because they would make me pee more, and could cause more M.E.-type symptoms, and would not be good for long-term use in my case. She ordered a blood test for anaemia, which is common in people with ulcerative colitis because of continuous low-level loss of blood, and which can cause ankle oedema. I asked about those circulation booster machines, and she said it certainly might help, and would do no harm. Looking them up on the Internet, they are pretty expensive, so I am now watching one on Ebay and hope the price doesn’t rise too high!

So now I am waiting for the result of the haemoglobin test, and for the end of the four-week period on the new medication, and we will see what happens. I am very pleased with our new doctors’ surgery – my new GP is extremely efficient, really listens, is friendly, and takes all these various niggles seriously. Untreated, reflux can increase one’s risk of developing throat cancer so it should not be ignored. I am happy that I can hope to feel a lot better soon, because something is being done about it.

Today I weighed myself for the first time for ages and was absolutely horrified! I have never been so heavy. I knew I’d put on a lot recently, and going on holiday and having lots of meals out, and starting each day with a full English breakfast and delicious home made scones probably hasn’t helped, but it’s given me the impetus to try and do something about it, so starting tomorrow, I am going on the Fast Diet (intermittent 5:2 fast where two days per week you consume a maximum of 500 calories, and eat normally the rest of the time) – I know several people on this diet and the results have been dramatic. Losing some weight should improve my health all round, I think.